Thursday, May 20, 2010

Finding the Upside to Chemo....

There is a way...1) look beyond the treatment, 2) plan something to look forward to later in the day and 3) bring some great chemo-companions along for distraction!

Week 1 of "pre-treatment" went pretty well. Of course I had some exceptional company to help keep my mind off of what was really going on each day. While Fred spent the better part of Tuesday keeping me pre-occupied, my dear friend Karen spent all day Friday in the chair by my side, keeping the nurses on their toes and making her expectations for my care well known to all.  After spending all day in the hospital we high-tailed it out of there to try and capture what was left of the sunshine. We headed over to the wharf, found a seat over looking the water at Joe's and promptly ordered our first Lobster Rolls of the season. Ahhhh...chemotherapy, uninterrupted conversation, fresh Bar Harbor Lobster Rolls by the water, and warm sunshine...does it get any better than that??! OK... maybe a margharita would have been a bonus but that was not to be:(

Side affects are minimal and manageable so far. The steroid keeps the fatigue at bay for the first couple days (actually I have to take something called Ativan to help me sleep and keep me from organizing my house and everyone else's on the street.)..then the third day my energy level drops alot but I have the next treatment day to look forward to - which will re-energize me...starting the cycle all over again.

Unfortunately the side affects are cumulative and get a bit more intense with each visit. The usual indigestion, nausea is expected but tolerable. My equilibrium is a bit off and besides the doorways in my house (who moved them??), the banana stand at Hannafords was an unfortunate victim (which Hayleigh thought was hysterical! Can u blame her?) I certainly gave the guy in produce something to chuckle about that night.

I had a fabulous Mothers day, with surprise visits from Nana, Greg, Kris, and their girls, Kate, Mike and Henry. Other than an ever so scary "roller coaster episode" in the morning, during which Fred wasn't sure if he should hold me, or run as fast as he could in the opposite direction, we had a relaxing day. Fred ended up taking all sharp knives and hot liquids away from me for the remainder of the day just in case. Another good reason to laugh for sure.
I think that's the key here...to keep laughing. It's a great tool for healing and coping and it certainly beats the alternative... so I'm going with it!

This Tuesday began week two of pre-treatment and my entourage consisted of Fred and Nana. This was really special, since mom was finally able to see first hand the exceptional facility where I will be transformed and meet many of the awesome team members who will be following my care from beginning to end. It will definitely make it easier for her to visualize things as we get farther into treatment and I was so glad that she could be there share in this part of the journey with me.

Friday will mean the end of round one and I am looking forward to it for lots of reasons. Besides getting to spend the "I.V. hours" with my incredible husband by my side, after treatment we will drive down to Fairfield Univ. in CT (of course I'll probably be sleeping!) to bring Shane back home for the summer, visit with Paul and Margaret for a few bit, and if all goes well, to enjoy dinner with Del and Steve on the rebound. The second half of the day will certainly make the first few hours much more palatable. Then again...the second half of these days...always is!

Many thanks for all the notes, e-mails and prayers as I begin my trek. Your words of encouragement and hope are incredible, and truly help keep my spirits on a positive track.

Love to all,
C

6 comments:

  1. Dear Cheryl,

    Glad to hear the start of "the adventure" was as smooth as it could be. It's great that Karen could be there with you. Just keep smiling and laughing - laughter is the best medicine (at least that's what they say!)

    Love,
    Margaret

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  2. Hello Cheryl,
    You are a superwoman and I pray with Stella for you every night before I tuck her in. She remembers you as the nice lady that would drop off the delicious food. We are so lucky to have your son Bret work for us. He is a true gentleman and testament of who you are.
    We send you all our love and energy
    Nelson Fernandez and the whole Hilliards family

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  3. Hi Cheryl,
    Thanks for inviting me to your blog.I think it will be helpful for Caroline to know what's going on, so she can be a more empathic friend to Hayleigh.

    Also, we would love to have Hayleigh come to the Cape with us for the week of June 28-July 2, if that would be helpful. Or the week of July 12-16. Let me know if there is anything at all I can do - picking her up, feeding her, having her overnight.

    You are so brave, and positivie, and determined! I am saying prayers for you every day.
    Barb

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  4. Hey Cheryl,
    It's Monday and the first round is complete. Congrads! So glad Karen and Mom were able to join you and let all the people know that we need them on their "A" game for this patient. :) Hope Karen didn't threaten with any face raking at the treatment site!! :) I am sure she was very acurate with her expectations of them. And what a wonderful friend to be able to come and be with you. So the steroids can be titrated down now that the first round is done, or are will you be on a maintaince dose for the next step? Keep your positive attitude it's already mid May and June will be upon us soon..
    Hang in there, enjoy the treatment free days - don't keep cleaning too many closet's.
    Love,
    Caryl [and John]

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  5. HI...I'm Cilla and I met you at BU yesterday. It was a pleasure to talk to you...your upbeat presnce and a couple of weeks "experience" were really helpful. I'm feeling pretty good...those steriods really do work!....
    I'll be back on Friday...maybe see you then! Scrabble anyone?
    Cilla Weatherbee

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  6. Cheryl -
    Thanks so much for sharing your blog with us and know your positive attitude is contagious and helpful to others experiencing your journey. It amazes me how similar some of the things you have described are to what Robert has experienced on this "Amyloid Odyssey". How well we remember hoping that call would come from BU saying, "well your doctors in Charlotte made a big mistake, you don't have this rare thing after all." And we too recognize the odd sense of blessing amidst the crisis. And...Robert is also VERY needle phobic...couple bad experiences with needles as a kid...the rationale mind says its silly but the subconscious takes control in these things at times. Thanks for stopping in to see us on Tuesday. It helps to share the experience with fellow travelers. We will be in the clinic again on Friday for the last dose of induction chemo (Cycle 2 Day 11) So far I can tell you Cycle 2 hasn't been terribly different for Robert from Cycle 1. Perhaps some more anxiety as SCT approaches, but in some ways a better grip on how to manage side effects. Anthony likes to push that Ativan :)

    We will be in the clinic early on Friday and hoping to get out by 10:45 am if possible as our son will arrive at the airport at 11:15 and we would like for him to not have to wait in the airport...but que sera sera...he is old enough to wait if he has to. Anyway, hope we will see you on Friday. Keep up the faith!
    Martha and Robert

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