Monday, September 20, 2010

Welcome Distractions bring on blog neglect !

September 13th Day +80!  Almost there...breath, pray...breath, pray...

For the faithful followers of my journey, I am sooo sorry I have not had the time to blog lately! The beginning of the school year brings lots of "assignments" for mom as well as the kids. I am just really glad that I am able to do these little projects for my kids! When I began this process, although hopeful, I really did not know how strong I would be at this point in my recovery (the un-known). And frankly, after being cooped up and tied down for the last 3 months, I would much rather be out and about doing things than sitting at a computer screen, no matter what the news is. (Do you blame me??) But I am happy to report that while operating a little slower than I did in my past life, I am able to do lots of things now. I am focusing on getting physically stronger and improving lung function by walking everyday, and lifting some weights to reinvent the muscles that seemed to have disappeared during the last 3 months. The fluid retention and fatigue is bothersome, but something I will have to deal with for a couple of years since the Amyloid proteins that are in my kidneys take so long to break down.

Had a great visit with our BC friends Vinnie and Laura last week who were up from Virginia to move two of thier 3 boys into BC dormitories! (The third one is at Emory in Atlanta...can you spell T..u..i..t..i..o..n..!!)
So great to sit and chat with them for a couple of hours!

The weather has been pretty awesome lately so we decided to venture to the cape for the day last week and check out our favorite bike trail. I wasn't sure if I was going to be able to ride that far, but we managed to put in about 12 miles anyway. First we rode about 4 miles along the shore, Falmouth to Woods Hole, then stopped for a fabulous, (and if I do say, well earned!) lunch at Phusion Grill.(You must try their Blackened Mahi Mahi Sandwich with spicy aoili! It it to die for!) Then after Hayleigh finished poking around in every store in town, we hopped back on the saddle and rode another 8 miles before "my seat" told me it was time to call it a day. Love that bike trip! It will definitely be an annual trip for us, although i'm not sure I can wait a whole year for that delicious sandwich!  I hope next time the boys can be here to join us.

This week I had another meeting with Dr. Malek,( my local hematologist), with my "entourage", Fred and Del, in tow of course.  My blood work came back with great numbers and Dr Malek is very pleased with how I am recovering. I told him I had all of you to thank for it! I will go back again in Oct and Nov to check blood work, then in December I will return to BU (kicking and screaming no doubt) for some 'revealing' biopsies.

And on the hair front...Fred swears that I have some new stubs to speak of this week...yeah! I told him that it was just a little hard to see because its coming in blond!! LOL

Love to all
Cheryl

3 comments:

  1. well it's about time you did another chapter for your reader/fans. glad your doing so well,just don't overdo it. will watch for another update in about 2 weeks. are you able to be on your own or does someone stay with you during the day. and also are you able to go out during the day for lunch or whatever and are you driving yourself now. anyway maybe i'll give you a call,and hopefully not wake you from a nap.keeping you in my prayers, my best to fred and the children.love uncle jack. P.S. it took 3 attempts to complete this comment note.if you hit a wrong key your posting just disappears.

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  2. Hey Cheryl,
    Great news, thanks for taking this time, keeping us Irish in suspense is tough... I was eamiling Margaret and Susan... You sound good, strong and like Cheryl.... so keep building the good numbers/cells. Fred and Dell have done a fabulous job and we are so proud of you for keeping the positive effort in recovery. We love you and continue to pray for a full and complete recovery... shall I add "and blonde hair too"??? Love ya, Caryl & family

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  3. Dear Cheryl,

    Thanks for the post. I'm so glad you don't have lots of time to update us because that means you're feeling really good. It was great spending the day with you, Fred and the kids. You may feel like you're not back 100% but you act like you are! You are one amazing woman! I hope I don't see a new blog for weeks! Because of course blog neglect means happy days!

    Love,
    Margaret

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